Again

Would it be too much to ask for more at home time like this.......

& for a little less of this

We will be in clinic today to do PFT's & see how well the antibiotics have worked so far....& this is why our lovely life is up & down right now. I have slept 3 hours in the past 3 days because I am still working, while taking care of sick children during the day & trying to allow my princess to enjoy some of the funner things in life just in case this leads to yet another agonizing hospital stay with IV tubes coming out of her precious little arms. I know shes worried also because she is constantly speaking about things she would like to pack to take to the hospital with us this time....it's sad when your 5 year old knows what she needs for a basic hospital stay.

I know it could be worse & theres people out there that have so many more problems & battle so much more but for once I just want a break.